Improving Congenital Heart Disease Care
1,000
about 3 years
18+
1 site in CA
What this study is about
This trial is testing a digital patient empowerment intervention for adults with congenital heart disease. The goal is to help patients feel more confident navigating the adult healthcare system and improve their quality of life. This tool includes features like a medical passport, updated information, community support, and patient stories.
Simplified from trial records by PatientMatch.
What you may be asked to do
- 1.Participate in Digital patient empowerment intervention
Participation Burden
What's physically and logistically required of participants.
Requires travel to a study site
How treatment is administered
Everyone gets the investigational treatment.
Extracted study details
Pulled from the trial record to show what is being tested and what the study is measuring.
Primary: Feasibility of the intervention, Recruitment rate
Secondary: Euro-Quality of Life